Participants-spirits

Participants of the topical meeting on Psychosocial Aspects of Osteogenesis Imperfecta


 


Declaration of Independence - Catherine Potterton


Living with OI, the impact on families - Margarida C. Santos


The language of disability: How to talk about OI - Blanca Ostarek & Maria Barbero

(presented by Maria Barbero)


Development of a QoL questionnaire for children with OI- Claire Hill


Everyday activity, important factors and QoL in children and youths with OI - Kristina Löwing

(presented by Eva Aström)


OI an QoL - measured by SF36 and discussed in light of clinical experience - Inger-Lise Andresen & Lena Lande Wekre


Perceived Activity level in a group of choildren with OI Type I and IV - Maud Hagberg


Sexuality, Self Image & OI - Philip Marais


Sexuality and OI - Allessandra Ciliberti


Influence of childhood experiences , signs of post-traumatic stress - Tendency for stress related disorders ? - Katerina Kavalidou


Euphoria and OI -are People with OI allowed to be Sad? - Rebecca Maskos

(presented by Taco van Welzenis)


Social Networks in the Doctor - Patient relation

Paolo Frachini


Psychosocial support from inside the OI community - Ute Wallentin


The art of balance - A description of 3 cases of adult patients with Osteogenesis Imperfecta - Arjan Harsevoort


To work or not to work, that is the question - Ingunn Westerheim