September 2008

1. To offer information and support to individuals and families affected by OI.
2. To encourage and support research.
3. To provide public and professional education and create awareness.

• Weekend conferences
  • An opportunity for families to come together and tap into medical experts
  • Provides on-going support and information exchange
• Newsletters
  • A credible source of information and community to members
• Supporting research ie through society donations
• Adult days (annual)
  • Re-connecting with adults who are no longer captured through children’s hospitals
  
  
• Good, long-term governance of the society



We have worked together with Professor David Sillence and Dr. Jenny Ault and others to produce two handbooks that have proven most popular for both the medical profession and laymen over the years. These are "Handbook for Medical Practitioners and Health Care Professionals" were produced in 1981 and updated in 1992. A new edition is about to be published this year.

The other major activity of the Society to further our aims is our bi- annual conference. br

The 10th OI conference was held on the 9 -11th of May 2008 and was a great success with over 100 attending. Some stayed the whole weekend; others came for the day or a night. It was a weekend filled with medical, disability and community information, fun, dramas and dreams for the future.

Many of the guest speakers were entertaining and informative such as

Prof. Raoul Engelbert from Holland. Having some one like him come to our conference and share his stories and knowledge with us deepened our realisation of just how important the OI society is to all affected by OI, being family, individuals or even the medical profession.
            
The Society celebrated its 30th birthday at the conference with Professor Engelbert cutting the cake!!!


last updated 6 October 2008